Health conditions
(Datenquelle: WHO)
Pediatric palliative and intensive care, pediatric and neonatal diseases
Neonatal Diseases
Pediatric palliative and intensive care
Interventions (Datenquelle: WHO)
This cross-sectional prospective study included a convenience sample of 34 (updated 02/09/2019, previously: 33) participating PICUs/NICUs representing 18 countries from the Americas, Europe, Asia, and Africa.
Two questionnaires with multiple choice and open-ended questions were applied to all centers to develop detailed descriptions of the participating units.
Questionnaire 1 focused exclusively on unit infrastructure, technology availability, and personnel ratios. Questionnaire 2 gathered further data on personnel, policies, and limited clinical and demographic data on a small sample of currently admitted patients.
Based on the IPPC recommendations, Questionnaire 2 inquired about practices related to the IPPC (The Initiative for Pediatric Palliative Care (IPPC): Quality domains, goals and indicators for family-centered care of children living with life-threatening conditions) domains:
1. Holistic care
2. Family support
3. Child-family unit involvement in care
4. Control of pain and other symptoms
5. Continuity of care
6. Support for grief and bereavement
The sum of these data reflects important aspects of the models of care employed in participating PICUs
Inclusion/Exclusion Criteria
(Datenquelle: WHO)
Inclusion criteria:
1. PICUs/NICUs
2. Local IRB approval to take part in the study
Exclusion criteria: ICUs that are not solely for pediatric/neonatal patients.
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Weitere Informationen zur Studie
Datum der Studienregistrierung
12.07.2019
Einschluss der ersten teilnehmenden Person
01.06.2016
Rekrutierungsstatus
Completed
Wissenschaftlicher Titel
(Datenquelle: WHO)
PICU MIC: Integrated care in pediatric/neonatal intensive care units around the world
Studientyp
(Datenquelle: WHO)
Observational
Design der Studie
(Datenquelle: WHO)
Cross-sectional prospective observational study (Treatment)
Phase
(Datenquelle: WHO)
Not Applicable
Primäre Endpunkte
(Datenquelle: WHO)
Adherence of PICUs/NICUs to the IPPC’s recommendations assessed using questionnaire 2.
Sekundäre Endpunkte
(Datenquelle: WHO)
PICUs/NICUs unit infrastructure, technology availability, and personnel ratios assessed by questionnaire 1.
Kontakt für Auskünfte
(Datenquelle: WHO)
Universidad San Francisco de Quito (Ecuador)
Ergebnisse der Studie
(Datenquelle: WHO)
Zusammenfassung der Ergebnisse
noch keine Angaben verfügbar
Link zu den Ergebnissen im Primärregister
noch keine Angaben verfügbar
Angaben zur Verfügbarkeit von individuellen Teilnehmerdaten
noch keine Angaben verfügbar
Studiendurchführungsorte
Durchführungsländer
(Datenquelle: WHO)
Argentina, Bolivia, Chile, China, Ecuador, Ethiopia, Ghana, India, Italy, Kazakhstan, Malaysia, Mexico, Philippines, Spain, Switzerland, Turkey, Ukraine, United States of America
Kontakt für weitere Auskünfte zur Studie
Kontakt für wissenschaftliche Auskünfte
(Datenquelle: WHO)
Michelle
Grunauer
Colegio de Ciencias de la Salud, COCSA Diego de Robles y Vía Interoceánica
(+593) 2 297-1700 ext. 1795
mgrunauer@usfq.edu.ec
Weitere Studienidentifikationsnummern
Secondary ID (Datenquelle: WHO)
Nil known
2016-091IN
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